This, I think, is interestingon
several levels. This is from 1986 and it was the first year of my
radio career and was the first time I was described as a
"celebrity." Also, the "donations" line is interesting.
At the time I didn't know anything about multiple sclerosis.
I recently took part in a video shoot, you can see part of it
here. at the BIOGEN HQ in Boston.
Click the "Fighter's forum" to see it.
I write and produce a series of videos on YouTube that chronicle my
experience with multiple sclerosis and the MS drug,
had MS, I have gotten two serious other medical problems;
Shingles and Swine flu. I doubt either are directly related to multiple
sclerosis (although there are some tenuous connections), because people who have gotten shingles or H1N1 flu don't
necessarily have MS. I will likely live with the Shingles scars and
face numbness all of my life.
I am a Patient Advocate for Biogen, the company that makes
Tysabri. I participate in and/or speak at various MS events
throughout the Midwest. I became a Patient Advocate in 2010, four years after
starting Tysabri in November of 2006.
Like the disease itself, the drugs for MS will affect everyone
differently. Yes, I started walking one day after my 3rd infusion of
Tysabri, but that doesn't mean everyone will notice a change that
quickly. Many have, but others have not.
The Albuquerque Journal; November 2000
While I started walking shortly after I began to take Tysabri in
November of 2006, I used a wheelchair for four years prior to that
time. I also received IV steroid treatments several times a year for
MS relapses. April of 2006 was the last steroid treatment I
I cannot believe there are those who continue to believe the CCSVI
theory for MS. Although, to be fair, few are still doing YouTube
videos about it, which was all the rage in 2009. A person may spend
thousands upon thousands of dollars on a "procedure" that may or may
not be beneficial. So, yes, it is a rip-off.
I am taking the drug "TYSABRI" for my MS and have been on it since
November of 2006. I get an IV infusion once every 28 days.