had MS, I have gotten two serious other medical problems; Shingles
and the Swine flu. I highly doubt either are related to multiple
sclerosis. Because people who have gotten shingles or H1N1 flu don't
necessarily have MS. I will likely live with the Shingles scars and
face numbness all of my life.
I am a Patient Advocate for Biogen, the company that makes
Tysabri. I participate in and/or speak at various MS events
throughout the Midwest. I became a Patient Advocate in 2010, four years after
starting Tysabri in November of 2006.
Like the disease itself, the drugs for MS will affect everyone
differently. Yes, I started walking one day after my 3rd infusion of
Tysabri, but that doesn't mean everyone will notice a change that
quickly. Many have, but others have not.
The Albuquerque Journal; November 2000
While I started walking shortly after I began to take Tysabri in
November of 2006, I used a wheelchair for four years prior to that
time. I also received IV steroid treatments several times a year for
MS relapses. April of 2006 was the last steroid treatment I
Good friend Chris Cox and
his band The Amazing Tragedy Circuswrote this MS awareness song and
I made the cut for the music
video. Thanks Chris!
About 3 years after I started the
Tysabri Recovery Series videos this story came out and it
prompted a visit to my house by the FDA. The videos have NOTHING to
do with Biogen, nor has it EVER paid me one cent for them. The
reporter never contacted me for my comments before it was published.
►I never had faith in CCSVI
view it as a scam.
I am taking the drug "TYSABRI" for my MS and have been on it since
November of 2006. I get an IV infusion once every 28 days.