Check out my YouTube videos
or click the film logo to the left. The focus of my videos/channel is to
offer a glimpse into my journey with MS and provide an inspirational
look at life with a chronic disease.
I am a Patient Advocate for the drug company, Biogen, which makes
the MS drug, Tysabri. As a PA I travel across the country speaking
at MS seminars about my experience with the disease and taking
"Dr. Paolo Zamboni has publicly concluded
that “the liberation treatment” for MS does not work."
I started having walking difficulties shortly after I was
diagnosed in 1998. Eventually I used a wheelchair for four
years before Tysabri came on the market.
I took part in a video shoot about
patient advocacy at the BIOGEN Headquarters in Boston. You can see
part of it
here or click the "Fighter's forum" to view it.
Speaking to people before an MS seminar in
This is the brochure that Biogen distributes to MS seminars and
doctor's offices nationwide;
I am taking the drug "TYSABRI" for my MS and have been on it since
November of 2006. I get an IV infusion once every 28 days.
UPDATE JUNE 2018. I now get an infusion every 6 weeks instead of