Living life with a chronic, progressive
disease is hard, but certainly NOT impossible and there are many,
wonderful opportunities along the way. For
example; I am able to talk and listen to many people with MS
throughout the country and I hope I help them as much as they help
Check out my YouTube videos
or click the logo above. The focus of my videos/channel is to
offer a glimpse into my journey with MS and provide an inspirational
look at life with a chronic disease.
I am a Patient Advocate for the drug company, Biogen, which makes
the MS drug, Tysabri. As a PA I travel across the country speaking
at MS seminars about my experience with the disease and taking
I started having walking difficulties shortly after I was
diagnosed in 1998. Eventually I used a wheelchair for four
years before Tysabri came on the market in the fall of 2006.
I took part in a video shoot about
patient advocacy at the BIOGEN Headquarters in Boston. You can see
part of it
here or click the "Fighter's forum" to view it.
Speaking to people before an MS seminar in
This is the brochure that Biogen distributes to MS seminars and
doctor's offices nationwide;
I am taking the drug "TYSABRI" for my MS and have been on it since
November of 2006. I get an IV infusion once every 6 weeks.