Living life with a chronic, progressive
disease is hard, but certainly
NOT impossible and there are many,
wonderful opportunities along the way. For
example; I am able to talk and listen to many people with MS
throughout the country and I hope I help them as much as they help
Check out my YouTube videos
or click the player above. The focus of my videos/channel is to
offer a glimpse into my journey with MS and provide an inspirational
look at life with a chronic disease.
In Detroit, September 2018
I am a Patient Advocate for the drug company, Biogen, which makes
the MS drug, Tysabri. As a PA, I speak at online webinars and travel across the country speaking
at MS seminars about my experience with the disease and taking
I started having walking difficulties shortly after I was
diagnosed in 1998. Eventually I used a wheelchair for four
years before Tysabri came on the market in the fall of 2006.
I took part in a video shoot about
patient advocacy at the BIOGEN Headquarters in Boston. You can see
part of it here or click the "Fighter's forum" to view it.
Speaking to people before an MS seminar in
The Spring and Summer of 2006 was the last time I had a relapse (I
had several during that time). This is a picture I took during the
first round of 3-day steroid treatments.
I am taking the drug "TYSABRI" for my MS and have been on it since
November of 2006. I get an IV infusion once every 6 weeks.