had MS, I have gotten two serious other medical problems; Shingles
and the Swine flu. I doubt either are directly related to multiple
sclerosis (although there are some tenuous connections). Because people who have gotten shingles or H1N1 flu don't
necessarily have MS. I will likely live with the Shingles scars and
face numbness all of my life.
I am a Patient Advocate for Biogen,
the company that makes
Tysabri. I participate in and/or speak at various MS events
throughout the Midwest. I became a Patient Advocate in 2010, four years after
starting Tysabri in November of 2006.
Like the disease itself, the drugs for MS will affect everyone
differently. Yes, I started walking one day after my 3rd infusion of
Tysabri, but that doesn't mean everyone will notice a change that
quickly. Many have, but others have not.
The Albuquerque Journal; November 2000
While I started walking shortly after I began to take Tysabri in
November of 2006, I used a wheelchair for four years prior to that
time. I also received IV steroid treatments several times a year for
MS relapses. April of 2006 was the last steroid treatment I
Good friend Chris Cox and
his band The Amazing Tragedy Circus wrote this MS awareness song and
I made the cut for the music
video. Thanks Chris!