At the NMSS volunteer award luncheon in Des Moines, March 2014
One of my recent YouTube videos centers around being thankful. I
compiled a list of 100 things for which I am thankful. Click here to view the list (in
I am a Patient Advocate for Biogen/IDEC, the company that makes
Tysabri. I participate in and/or speak at various MS events
throughout the Midwest. I became a Patient Advocate four years after
starting Tysabri in November of 2006.
Like the disease itself, the drugs for MS will affect everyone
differently. Yes, I started walking one day after my 3rd infusion of
Tysabri, but that doesn't mean everyone will notice a change that
quickly. Many have, but others have not.
The Albuquerque Journal; November 2000
For those who don't know: Yes, I believe CCSVI is a joke.
Just like the issue of medical marijuana, there is no CLINICAL proof
that the Liberation procedure is helping anyone with MS.
I think most people with MS know about CCSVI.
Click the icon below to go to my YouTube video on the topic.
Yep, the CCSVI theory is crap;
I am taking the drug "TYSABRI" for my MS and have been on it since
November of 2006. I get an IV infusion once every 28 days.
My Neurologist is Doctor
Bruce Hughes, the head of the Ruan MS Center at Mercy Hospital
in Des Moines.
With friends Barbara and Tom Sales at the BIOGEN Advocate Conference in Boston
in 2013; getting fuel for another year. :)