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Living life with a chronic, progressive disease is hard, but certainly not impossible and there are many, wonderful opportunities along the way.  

 

 

 Check out my YouTube videos here or click the logo above. The focus of my videos/channel is to offer a glimpse into my journey with MS and provide an inspirational look at life with a chronic disease.

 I am a Patient Advocate for the drug company, Biogen, which makes the MS drug, Tysabri. As a PA I travel across the country speaking at MS seminars about my experience with the disease and taking Tysabri.

 

 

I started having walking difficulties shortly after I was diagnosed in 1998. Eventually I used a wheelchair for four years before Tysabri came on the market in the fall of 2006.

 I took part in a video shoot about patient advocacy at the BIOGEN Headquarters in Boston. You can see part of it here or click the "Fighter's forum" to view it.

 

Speaking to people before an MS seminar in Lebanon, Oregon;

 

 

This is the brochure that Biogen distributes to MS seminars and doctor's offices nationwide;

 

 

 

 08/12/2018

 

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I am taking the drug "TYSABRI" for my MS and have been on it since November of 2006. I get an IV infusion once every 6 weeks.

 

 

 

 

 

 

 

 

About 3 years after I started the Tysabri Recovery Series videos on YouTube, CBS News published this story (click the image above)  and it prompted a visit to my house by the FDA. Biogen has never paid me one cent for the videos (nor have I sought compensation), 

The reporter, inexplicably (but not surprisingly) never contacted me for my comments before it was published.