Home Book   Photos About Me

I am a Patient Advocate for the drug company, Biogen, which makes the MS drug Tysabri. As a Patient Advocate I travel across the country speaking at MS seminars about my experience with the disease and Tysabri.

 

I write and produce a series of videos on YouTube that chronicles my experience with multiple sclerosis and the drug Tysabri.

 

A comic 'Storyboard" from my laterst YouTube video.

 

 

 

I started having walking difficulties less than a year after I was diagnosed in 1998. Eventually I would be using a wheelchair for four years before Tysabri came on the market.

 

 I took part in a video shoot about patient advocacy at the BIOGEN Headquarters in Boston. You can see part of it here or click the "Fighter's forum" to view it.

 

Boston video shoot 2015

 

Speaking to people before an MS seminar in Oregon;

 

 

This is the brochure that Biogen distributes to MS seminars and doctor's offices nationwide;

 

 

 

 

 

 12/16/2017

I am taking the drug "TYSABRI" for my MS and have been on it since November of 2006. I get an IV infusion once every 28 days.

 

 

 

 

 

 

 

 

 

 

 

About 3 years after I started the Tysabri Recovery Series videos on YouTube this story (click the image above) came out and it prompted a visit to my house by the FDA. The videos have NOTHING to do with Biogen, nor has it EVER paid me one cent for them. The reporter, inexplicably (but not surprisingly) never contacted me for my comments before it was published.