Yet another hurdle cleared; The FDA has now
approved a new MS pill for the U.S. and
European markets. It is called BG-12.
The US FDA has now issued a warning against the so-called Liberation
Therapy for MS. That is a good thing because I think CCSVI is a
scam. I wouldn't doubt that supporters will dismiss this as a
"conspiracy."
The FDA warning against getting the
so-called Liberation procedure for MS may impact a lot of the
clinical trials now underway for CCSVI. At least 1 of the trials
listed at
clinicaltrials.gov has stopped, others are ongoing.
Another reason I am not stopping is that
Tysabri has improved my
life 1,000% since I started in
November of 2006 and I think the
chances of getting PML are very, very slim (miniscule, actually).
I get a lot of positive mentions on an Investor Village message
board. Most of these people have a direct investment in
pharmaceutical companies like Biogen.
Sorry for the all caps shouting subject line but amidst all of
the posts yesterday - Vern's 60th Tysabri Infusion video posted by
upelan must have been missed by most here as it only has 4 recs.
Please take the time to listen to Vern (at the link below)
describe his 5 yrs on Tysabri while all the time being JCV positive.
This is a must see - must hear video and is a CELEBRATION
... of how good TYSABRI has been for him compared, in direct
contrast, to how he did on the ABC's.
Thanks again upelan! and special Thanks and
Congratulations to Vern and the whole Tysabri crew for making a hugh difference in the quality of life for MS Patients with a
Choice and finally a Chance... Double Kudo's all
around.
What Tysabri has done for
me; Click on the photo (below) to see my
video.
Tysabri is a HIGHLY EFFECTIVE
drug with some
risks.
NO FEAR.
I was recently tested (blood) for the presence of
PML antibodies and I did test positive, which means I am
at higher risk to
get the sometimes-fatal brain disease (PML). So? My YouTube video on the topic
can be seen
here.
Since I was diagnosed with MS in
1998 I have had about 1/2 dozen MRI's. An MRI gave me a definitive
diagnosis of MS.
If you have never experienced an
MRI consider yourself lucky. This
video
outlines EXACTLY what an MRI experience sounds like.
My Neurologist is Doctor
Bruce Hughes, the head of the Ruan MS Center at Mercy Hospital
in Des Moines.
Julie and I recorded a video where she talks about Tysabri
and PML from a caregivers perspective. You can watch it
here.
Yes, back in 2009 I was excited about Dr Zamboni's findings (in fact
I made a video about it
HERE). In
seeing the research and the failed outcomes I just think doctors
pushing CCSVI are little more than hucksters and scam artists. I
have added notes to my original YouTube video rather than removing
it completely.
I think Zamboni is one of the biggest scammers of all.
CCSVI Scam
Yes, some have seen improvements from the so-called Liberation
procedure but more and more people are increasingly NOT
being helped. Given the lack of evidence on the vascular condition, why are people
STILL spending
thousands of dollars (and holding fundraisers) to get it done?
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